A brave little boy with rare skin condition from Nevada, Carter Bresee, has overcome unimaginable challenges in his young life. Born with a rare skin condition known as lamellar ichthyosis (LI), Carter had never experienced the simple act of blinking or sleeping with his eyes fully closed in his seven years. However, thanks to a successful surgery, this boy with a rare skin condition can now finally sleep peacefully.
Lamellar ichthyosis is a genetic disorder that causes the body to produce skin cells that don’t separate properly, resulting in thick, brown scales. In Carter’s case, the condition severely affected his eyelids, causing them to turn outward and preventing him from blinking or closing his eyes. This boy with a rare skin condition faced constant pain and discomfort, as he had to endure the world with his eyes open at all times.
Carter Bresee’s journey over the years led him to develop a strong supporter base in Nevada.The community rallied around the boy with a rare skin condition, raising $46,000 through a GoFundMe campaign to cover the cost of his life-changing oculoplastic surgery, far surpassing the initial $8,000 goal.
Carter Bresee’s mother, Shai, expressed her gratitude to the community, saying, “I didn’t realize what a sense of community we really had. It’s really crazy to feel so included.” The overwhelming support for this boy with a rare skin condition highlighted the compassion of those who stood by his side.
In May 2024, Carter Bresee underwent the crucial eyelid skin graft in San Diego, and the surgery was a resounding success. For the first time in his life, this boy with a rare skin condition slept with his eyes closed—and slept soundly. “He slept until noon today,” Shai shared in a video interview, marveling at her son’s peaceful rest after enduring years of pain. “He got the best night’s sleep.”
Throughout the difficult journey, CarterBresee displayed immense courage, calmly enduring the sometimes painful recovery process. Shai described her son as a “champ,” praising his strength and resilience as he bravely faced the challenges of his rare skin condition.
This heartwarming story of community support, medical breakthroughs, and a boy’s indomitable spirit serves as a beacon of hope for others faces similar challenges.
